COCAPP findings published

This morning saw the publication of the full and final report from COCAPP. COCAPP has been led by Professor Alan Simpson from City University London, and (as readers of this blog will know) has been concerned with care planning and coordination in community mental health, and the relationships between these processes and recovery-oriented and personalised care.

Today’s report appears in a single issue of the NIHR’s Health Services and Delivery Research journal. Following the link above takes you to a page from which the complete, 218-page, document can be downloaded. For a shorter read, follow the links instead to either the scientific or the plain English summaries.

Over on the COCAPP blog site, meanwhile, Alan Simpson and Alison Faulkner have written this accessible summary:

Who carried out the research?

The research was carried out by a team of researchers from three universities: City University London in England, and Cardiff and Swansea Universities in Wales. The team was led by Professor Alan Simpson at City University.

Service user and carer involvement:

Of the 13 researchers working directly on the study, six were involved in part time roles as service user researchers: one as co-applicant and the others to interview service users and carers. In addition, there was an advisory group of people with lived experience.

Who funded the research?

The National Institute for Health Research (NIHR) Health Services and Delivery Research Programme (HS&DR 11/2004/12). This is a Government research funding body.

Why did we do the research?

Although there are two different systems in England and Wales, both mean that people receiving mental health services should have a care coordinator, a written care plan and regular reviews of their care. With the introduction of the recovery approach and personalisation, it is now expected that care planning and coordination should be recovery-focused and that people will be taking more control over their own support and treatment.

What were the aims of the research?

We wanted to find out what helps and what hinders care planning for people with mental health problems to be collaborative, personalised and recovery-focused.

By collaborative we mean that care planning is completed in partnership with the service user: the care coordinator works with the service user to plan their care.

By personalised we mean that care is designed with the full involvement of the service user and designed to meet their individual needs.

By recovery, we mean ‘a personal journey … one that may involve developing hope, a secure base and supportive relationships, being more in control of your life and care, social inclusion, how you develop coping skills, and self-management … often despite still having symptoms of mental illness.’

Where was the research carried out?

The research was carried out in six NHS mental health service provider organisations: four in England and two in Wales. One of the reasons for carrying out the research in both England and Wales is that Wales has a legal framework in place called the Mental Health Measure, introduced in 2010. This is intended to ensure that where mental health services are delivered, they focus more appropriately on people’s individual needs. In England, care planning is informed by guidance and is not legally required.

What did we do?

The focus of our research was on community mental health care. We wanted to find out the views and experiences of all of the different people involved: care coordinators (in community mental health teams), managers, senior practitioners, service users and their carers.

  1. We carried out an extensive literature review.
  2. We sent out questionnaires to large numbers of people, and received replies from service users (449) and care coordinators (205); these included questions on recovery, therapeutic relationships, and empowerment.
  3. We interviewed senior managers (12) and senior practitioners (27), care coordinators (28), service users (33) and carers (17).
  4. We reviewed 33 care plans with the permission of the service users concerned.

What did we find?

Summary of the survey findings:

  • There were no major differences between the six sites on the empowerment or recovery scores on the service user questionnaires;
  • There were some significant differences between the sites on therapeutic relationships: where there was good collaboration and input from clinicians, relationships were rated as more therapeutic;
  • We also found significant differences between sites on some recovery scores for the care coordinators: where they saw a greater range of treatment options, the service was rated as more recovery-focused;
  • We found a strong positive correlation between scores on the recovery scale and the therapeutic relationship scale for service users; this suggests that organisations perceived to be more recovery-focused were also perceived as having more therapeutic relationships.

Safe staffing

In a post on this site last year I drew attention to the (highly contested) decision by NICE to suspend its work on safe nurse staffing in inpatient mental health settings. Now, and with thanks to Shaun Lintern from the Health Service Journal (and to John Baker, who amongst mental health nurses has worked particularly hard to keep this issue alive), NICE’s evidence review in this area has just been published.

Here’s how the news was broken earlier this week:

Here’s a quick summary. Seven research questions were asked in the review, with searches made of fifteen databases for evidence published since 1998. To be included, studies had to report on at least one of:

  • staffing in relation to outcomes;
  • staffing in relation to factors (such as service user factors, environmental factors);
  • staffing in relation to factors and outcomes.

Studies were eligible for inclusion if they reported findings from inpatient mental health areas serving people of any age. Outcomes of interest included serious incidents (e.g., self-harm, violence), delivery of nursing care (e.g., levels of contact) and other (e.g., nurse vacancy rates). Following a process of searching and sifting just 29 papers were finally included, and subject to quality appraisal. And the conclusions? Here they are, as extracted by John Baker with a call for action:

 

Cumulative insights

Not for the first time, I’ve attempted to produce some cumulative insights from the past and present mental health research studies I’ve had the opportunity to work on. These include my PhD investigation into work and roles in community mental health care, my post-doctoral study of crisis services, and more recent projects which Alan Simpson, Michael Coffey or I have led on.

The prompt, on this occasion, has been the chance to give a presentation at a School of Healthcare Sciences research seminar taking place this afternoon. For anyone interested, here is the PowerPoint I used. I opened with some general comments on the need for mental health research, and on the funding landscape. I then had some things to say about theory, design and methods. Many of the individual slides have hyperlinks to green open access publications:

Out of the Asylum

Belated happy new year. Visiting the Royal College of Nursing headquarters in London last Friday ahead of a meeting of the Network for Psychiatric Nursing Research (NPNR) conference committee (more on that below) gave me an opportunity to pop into the ‘Out of the Asylum’ exhibition. I’m glad I did. Texts, photographs and other artefacts illustrate the history of mental health nursing.

2016-01-08 11.25.57Here are some of the pictures I took. These include a photo of the RCN’s copy of a sixth edition of the Red Handbook, displayed alongside nurses’ badges, a Bethlem Royal Hospital pamphlet, a syringe and other items of interest. For more on the Red Handbook see this earlier post, along with this post which includes material from my copy of a fourth edition of the same. Another picture relates a set of regulations for the bathing of patients. 

One of the display boards makes the observation that ‘few mental health nurses now wear uniforms’. As an unfortunate aside, this may need some future updating. From what I’m hearing, the historic trend towards mental health nurses wearing everyday clothes at work is reversing, with numbers of NHS trusts and health boards contemplating a return to uniforms. I regret that. But sticking with the exhibition…

…a final photograph I’m reproducing here is the front sheet of an early 1930s examination paper. Look hard and you’ll see questions on bones, asphyxia and antiseptics (amongst other things).

The NPNR planning meeting, this being the purpose of my trip,  was a productive one. This year’s event (the 22nd) will be taking place in Nottingham on September 15th and 16th. I’ll add more on this when I can, and include some regular updates on this site.

 

 

Community Gateway 

Yesterday I spent the morning at the Grange Gardens Bowls Pavilion in Cardiff at a Community Gateway event. This was an opportunity to hear about mental health and wellbeing, and to learn how local services are set up. The day was organised by my School of Healthcare Sciences colleagues Alicia Stringfellow and Gemma Stacey-Emile, working with members of the community. I appreciated the update on the activities of the community mental health team (CMHT) based in the Hamadryad Centre, and learnt more about what local Hafal and CAVAMH services are doing. It will be interesting to see how mental health, and health more generally, feature in the Community Gateway in the future.

Community mental health teams are often described as the cornerstone of locally accessible, specialist, mental health services. Working with its two local authority partners, Cardiff and Vale University Health Board currently provides eight CMHTS for adults of working age. The team based at the Hamadryad, I was reminded yesterday, covers the south west of the city taking in the Bay, Butetown, Grangetown, Riverside, Canton and Pontcanna. Speaking in the Bowls Pavilion, CMHT manager Phil Ball did a good job in separating out the work of his team from that of the primary mental health support service (which happens to share use of the Hamadryad building).

Meanwhile…

…for anyone wanting to become a mental health nurse, worth noting is that the School of Healthcare Sciences still has some places available for the BN Hons programme commencing in March 2016. The photo here, of a flyer brought to yesterday’s event, gives more information.

Fees, theses and project updates

Last week brought the news that, in England, people beginning nursing degrees from the 2017-18 academic year will need to take out student loans to cover the cost of their tuition fees. The cap on student numbers will also be removed. The Council of Deans of Health broadly supports this move, having previously argued for change. One of the things it points out is that current funding for students (via the agreement of the benchmark price) does not cover the real costs of educating new nurses. The Royal College of Nursing, on the other hand, is concerned that last week’s announcement prepares to break the connection between the NHS and financial support for student nurses, and simultaneously risks making nursing a less attractive career option. This concern particularly relates to mature students and those contemplating a second degree, for some of whom the prospect of additional debt may be exceptionally unappealing. As a nurse academic in Wales I wait with interest to see what policy on fees will emerge from the Welsh Government.

In other news, I find myself engaged in a prolonged period of doctoral student activity. I’ve examined a number of theses in and out of Cardiff in recent months, and have sat with students during their vivas as either supervisor or independent chair. This term has been particularly packed. Plenty of writing has also been taking place: papers and reports are being written from COCAPP, RiSC and Plan4Recovery, and from completed theses I have helped to supervise. Data generation in COCAPP-A has almost concluded, and new research ideas are taking shape. Exciting times, if a little frenetic. 

RCN in Wales award, public engagement and research student symposium

Lots of interesting things to relate in this post. November 13th saw Nicola Evans and me join Hayley Reed, Ed Janes, fellow-researchers Rhiannon Evans, Nina Jacob, Rhys Bevan-Jones and (most importantly) members of the mightily impressive ALPHA group at an ESRC Festival of Social Science-funded public engagement event focusing on young people and mental health. Organised with the help of SciSCREEN, the evening was hosted at Cardiff University’s Hadyn Ellis Building and began with a viewing of The Perks of Being a Wallflower. Post-film and post-food saw groups of young people, ALPHA members and researchers disappearing into interactive workshops. Nicola and I facilitated a discussion on supporting young people returning to school following a period of care in mental health hospital. This is a theme very much arising from our RiSC study, and in our session ideas and energy were in abundance. Interested readers wanting more on the work of ALPHA can see their video here:

https://www.youtube.com/watch?v=SRf1jSDwig8

November 17th was the School of Healthcare Sciences’ annual postgraduate research student symposium. This was, as usual, an excellent showcase for the PhDs and Professional Doctorates ongoing in the School. Follow this link for information on individual students and their projects.

I’ll write more about this in a separate post, but on Thursday November 19th, in Cardiff City Hall I was pleased to receive the Research in Nursing Award for 2015 at the Royal College of Nursing in Wales Nurse of the Year event. I appreciated very much the kind messages from esteemed friends and colleagues received via Twitter, text and email. I am particularly happy to have won this award as a mental health nurse, again being reminded of the need for investment in both mental health services and in research to find out what helps.

Higher education Green Paper

The much-trailed higher education Green Paper appeared last week. For the full document, the place to go is here and for a Times Higher summary the link is here. Immediately worth bearing in mind is that higher education in the UK is a matter for devolved government, meaning that most of what the Green Paper says relates to English universities. I say ‘most’ because, as is noted towards the beginning of the document, the Research Councils (like the MRC and the ESRC) have UK-wide remits, whilst the REF and the various editions of the RAE preceding it were carried out on a four-country basis. It would also be naive in the extreme to suggest that universities and policymakers here in Wales can ignore the England-only bits of what the Green Paper has to say; for a nice piece on the Green Paper and devolution, follow this link. And, for an insight into work ongoing in Wales on matters higher education-related, here’s a link to a current review of funding arrangements.

Fulfilling our potential: teaching excellence, social mobility and student choice, to give the Green Paper its full title, proposes plenty of change. It also leaves much of the detail unfilled, and (in at least one analysis) contributes to an emerging higher education policy framework which is both vague and contradictory. One idea is for the Higher Education Funding Council for England and the Office for Fair Access to combine functions within a new Office for Students. Plans for a Teaching Excellence Framework are outlined, along with variable rates of tuition fees. Ahead of the publication of the document there was some talk that REF2014 might have been the last of its kind. What the Green Paper actually says (briefly) is that dual support for research should remain, and that some version of the research excellence framework should continue and be used as the basis for the allocation of government block funding. The next REF, it is suggested, will take place by 2021. But there is obviously more to follow in this context, with sections in the document referring to the administrative burden and cost of the REF and the possible use of metrics to ‘refresh’ quality assessments in between full cycles of peer review. There is also the small matter of having to determine, if the Higher Education Funding Council for England disappears, which body should in the future assume the task of allocating quality-related funding to English universities.

Meanwhile, the sole nurse to get a mention in the Green Paper and its surrounding commentary is Sir Paul Nurse, Nobel Laureate, President of the Royal Society and chair of the review into the UK’s research councils. Nurses, of the type of which I am one, have to look elsewhere for the specifics on possible future arrangements for the organisation and funding of health care professional education and for debates in this area.

Cardiff Public Uni

Last week on this site I wrote a brief piece trailing the seventh Cardiff Public Uni at Chapter. Here, now, is a summary of what happened extracted from the Cardiff Business School news archive:

Five academics presented their research in digestible bite-size chunks at the 7th Public Uni event held at Chapter Arts Centre, Thursday 15 October 2015.

The evening’s topics represented a diverse range of disciplines and themes, bringing together academics from the arts, humanities and sciences.

Dr Ben Hannigan, Reader in Mental Health Nursing at Cardiff University’s School of Healthcare Sciences, kicked off proceedings with a look at how the majority of formal mental health care, in the last century, was provided in hospitals but this changed with the emergence of community care. Dr Hannigan discussed how this came about and the people, policies and practices found within the system now.

Female menstruation remains a largely unspoken topic, simultaneously mundane and taboo. Dr Victoria Leonard, from the School of History, Archaeology and Religion at Cardiff University, explored how entrenched the silence is around monthly bleeding showing how it has been received and represented throughout history.

Dr Dan Read, from the Cardiff University’s School of Physics and Astronomy, highlighted how we have been aware of the existence of magnetic materials since the 4th century BC and asked what have they done for us? His talk illuminated the eventful and fascinating history of magnets.

Cardiff Business School’s Professor Peter Turnbull asked how safe is it to fly, given major cost cutting exercises, and looked at the growing concerns of European regulators that have yet to filter through to the travelling public.

The evening’s final speaker was Dr Emily Garside who explores how plays about AIDS often became first-line of response for activism, awareness raising and fundraising. She explored whether how we use theatre to talk about HIV/AIDS in the UK today.

Speaking about the event, moderator Dr Marco Hauptmeier from Cardiff Business School, said: “The Public Uni series continues to go from strength to strength, generating real buzz, enthusiasm and audience engagement.

“As researchers it is exciting to be able to breakdown your research for an audience, hear their response to it and consider their insights and perspectives. We look forward to continuing to develop the Public Uni series, providing an accessible platform for the diverse and important social, political and cultural research produced across Cardiff.”

The Public Uni series, organised by Dr Marco Hauptmeier from Cardiff Business School and Harriet Lloyd from the School of English, Communication & Philosophy, gives researchers the opportunity to present their ideas and findings to the public in short 10-minute segments. The informal setting and relaxed atmosphere helps to make the research more accessible to audiences outside of the academic arena. Each event highlights the breadth and depth of the exciting research undertaken at Cardiff University.

Follow on Facebook and Twitter to heart about forthcoming events in the Public Uni series or sign-up to the mailing list.

I can confirm that the evening was a thoroughly enlightening and enjoyable one. My thinking now is that the relationship between the ten minute Public Uni format and the standard lecture is comparable to the relationship between Twitter and the traditional academic essay. Succinct, direct, engaging.