Category: Mental health

COCAPP: involving service users

Time this morning for a brief post drawing attention to two excellent opportunities for people with personal experience of using mental health services to contribute to COCAPP.

I’ve written about COCAPP on this site before, and we’re now looking for people to work with us in the recruitment of participants and with the generation of data.

Information about the positions can be found by clicking this link, then following the link onwards to ‘Managerial, Administration and Support’. The opportunities are listed as vacancy number 1007BR, ‘Service User Project Assistants’.

Meeting new students

This morning began in class with a group of 25 or so (very) new students of mental health nursing. The session revolved around a series of open-ended questions, in family therapy style, put to John Hyde and to me by Nicola Evans. Nic invited us to share something of our personal experiences in mental health nursing: as students, practitioners, educators and researchers. In a decidedly non-random way, one of Nic’s questions invoked the idea of ‘critical junctures’, echoing our paper in this area but referring, in this context, to pivotal moments within our individual careers thus far.

From a learning point of view the premise was to introduce new students to the rich and varied world of mental health nursing, via a listening in to a reflective conversation conducted on the same. I found it an interesting experience, and hope the students did too. In my early morning mental preparation before participating it became necessary to conjure up people, places and events dating back to at least the late 1980s. So today I remembered my first student placement working (in East London) with a community mental health nurse, my first job as a qualified practitioner, and my eventual move to Cardiff. Fascinating

Using research

I very much hope that UK readers of this blog have enjoyed this year’s summer (which, at least, coincided with the early May bank holiday weekend). Right now we’ve been plunged back into autumn, or so it feels here in South Wales. Wind and rain are everywhere.

Here’s a wordcloud used during Friday morning’s teaching with students of mental health nursing, during which I shared something about COCAPP and other (past and present) research projects involving people working in the Cardiff School of Nursing and Midwifery Studies. One of the things I did was to draw students’ attention to my paper on complex trajectories in community mental health, as previously blogged about here. Unrelatedly, towards the end of Friday I also caught sight of some newly delivered reviewers’ feedback on a grant proposal on which I am a co-applicant. One of the points the reviewers made was to encourage us, as a research team, to plan to do more to get future findings into services and practice.

The first of these otherwise unconnected events was a modest attempt to close the gap between research and education. The second was a reminder of the importance of closing the gap between research and the world of health and social care. So with both experiences in mind this post is about getting research out of the hands of academics and into the hands of others who might use it: practitioners and students, service managers, policymakers, users, carers. Coming not long after my recent post on the assessment of outputs in the Research Excellence Framework, this post might also be thought of as an excursion into ‘impact’.

Within single university departments it ought to be reasonably straightforward to bring research and teaching closer together. This said, I can still clearly remember co-presenting with Cardiff colleagues at a nursing research conference in London in the late 1990s only to be told, by a student who had travelled from our own school, that she had had no previous idea who we were or that the research projects we had discussed were ongoing. That was a salutary moment, and since then I have taken opportunities to directly bring research (mine, my colleagues’, other people’s) into the modules I have led and contributed to. And of course, I am hardly alone in doing this kind of thing. But across the whole higher education sector demarcations are growing between ‘teachers’ and ‘researchers’, with universities routinely differentiating between staff on the basis of their expected roles. If researchers become less involved in teaching then the risk is run that naturally occurring opportunities for projects to be brought into the classroom, by those who are running them, will dwindle.

But if integrating research and teaching can be challenging then getting research findings out of universities’ doors for the benefit of all is harder still. In the health and social care fields the publication of findings in peer reviewed journals comes with no guarantee that these will be read, or used to inform anything which happens outside of academia. In nursing (and I imagine in many other practitioner disciplines too) this has often been seen as part of the ‘theory/practice gap’ problem. Nurses have spent a long time agonising over this, and typing some suitable search terms into Google Scholar produces some 200,000 documents (that’s the slightly obscured number circled in red in this screenshot) evidently devoted to its examination:

Nurses are not alone in having concerns of this type. The Cooksey review of UK health research funding talked about tackling the ‘translation gap’ through getting ‘ideas from basic and clinical research into the development of new products and approaches to treatment of disease and illness‘, and at the same time ‘implementing those new products and approaches into clinical practice‘. Universities are increasingly urged to do better with their ‘knowledge exchange’ activities. And, as we know, the Research Excellence Framework 2014 has introduced the idea of assessing ‘impact’.

‘Impact’ in the REF2014 Assessment framework and guidance on submissions document is defined ‘as an effect on, change or benefit to the economy, society, culture, public policy or services, health, the environment or quality of life, beyond academia‘. It’s about research being ‘felt’ beyond universities, and assessing this. The assessed bit is important in the formal REF exercise because impact (presented using case studies, and counting for 20% of the overall quality profile to be awarded to each individual submission) will be graded using this scale:

Four star Outstanding impacts in terms of their reach and significance.
Three star Very considerable impacts in terms of their reach and significance
Two star Considerable impacts in terms of their reach and significance
One star Recognised but modest impacts in terms of their reach and significance
Unclassified The impact is of little or no reach and significance; or the impact was not eligible; or the impact was not underpinned by excellent research produced by the submitted unit.

As in the case of the assessment of outputs I am struck by the fine judgements that will be required by the REF’s experts. I suggest that one person’s time-pressed ‘very considerable’ may well turn out to be another’s ‘considerable’, or even ‘modest’.

Issues of reliability aside, the inclusion of ‘impact’ in REF2014 has got people to think, again, about how to close some of the gaps I have referred to above. For researchers in health and social care there has been new work to do to demonstrate how findings have been felt in policymaking, in services and in the provision of care and treatment. Who would object to the idea that research for nursing practice should have benefits beyond academia? But as many of the documents I identified when searching for papers on the theory/practice gap (along with newer materials on ‘knowledge exchange’) will no doubt confirm, demonstrably getting research into policy, organisations and practice can be fiendishly hard.

There are many reasons why this is so. Not all research findings have immediate and direct applications to everyday health and social care. Even when findings do have clear and obvious application, university-based researchers may not be best-placed to do the necessary ‘mobilisation’ (to use the currently fashionable phrase), including in relation to knowledge which they themselves have created. And by the time peer reviewed findings have reached the public domain, policy and services in fickle, fast-moving, environments may have moved on. In cases where we think research has made a difference there is also the small matter, in the context of the REF, of marshalling the evidence necessary to demonstrate this to the satisfaction of an expert panel. In any event research is often incremental, with knowledge growing cumulatively as new insights are added over time. Given this we should, perhaps, have rather modest expectations of the likely influence of single papers or projects.

Beyond this it is always good to hear of new ways in which wider attention might be drawn to research and its benefits, and a rich resource for people with interests in this area is the multi-author blog and associated materials on the impact of the social sciences run by the LSE. This is a suitably interdisciplinary initiative, which can be followed on Twitter at @LSEImpactBlog. I recommend it (and not just to social scientists), and as a starting point its Maximising the impacts of your research document. This sets out to provide ‘a large menu of sound and evidence-based advice and guidance on how to ensure that your work achieves its maximum visibility and influence with both academic and external audiences‘, and as such has lots of useful observations and suggestions.

Teaching research

I’ve been laid a little low this week having managed to pick up a mischievous virus somewhere on my recent travels. On Wednesday, in particular,  my throat felt as though it had been lightly sandpapered. My thanks to the inventors of both paracetamol and ibuprofen.

Following a half-morning of teaching, and before making an early getaway, yesterday I joined the rest of the Welsh chapter of the larger COCAPP team to plan the next instalment of our metanarrative mapping and comparative policy analysis. Tomorrow morning I’ll be talking research with a group of pre-registration student mental health nurses. What I really ought to do (even though, strictly speaking, this is not the purpose of the session) is to alert people to COCAPP and to the other research taking place in the Cardiff School of Nursing and Midwifery Studies. I think there is more which could be done to close the gap between teaching and research, and I’ll take the opportunity tomorrow to alert students to what’s happening on their very doorstep.

From ‘The Red Handbook’ to ‘The Art and Science of Mental Health Nursing’

Unbidden, but very welcome nonetheless, a freshly pressed copy of the third edition of Ian Norman and Iain Ryrie’s edited The Art and Science of Mental Health Nursing: a Textbook of Principles and Practice has arrived on my desk. This is a mighty tome indeed, and this latest version promises to cement the book’s status as a ‘must have’ for pre-registration students of mental health nursing.

A rather earlier text I also have a copy of is The Handbook for Attendants on the Insane, which Peter Nolan tells us was first published in 1885. This was the first book produced in the UK for the express purpose of instructing people we now uniformly call mental health nurses, and was produced at the instigation of the Medico-Psychological Association (MPA). The MPA later became the Royal Medico-Psychological Association, and eventually the Royal College of Psychiatrists.

No sooner had the Red Handbook (as it was often referred to) appeared than questions were being asked about the wisdom of educating attendants. This is a point Henry Rollin makes in this paper marking the centenary of the Handbook’s publication. In this extract, Rollin quotes from an (unnamed) reviewer writing in the Journal of Mental Science (now the British Journal of Psychiatry) in the year the Handbook went to print:

“We are not quite sure ourselves whether it is necessary or wise to attempt to convey instructions in physiology, etc., to ordinary attendants. Will they be the better equipped for their duties for being told that the brain consists of grey and white matter and cement substance?”, writes the anonymous reviewer. He adjusts his elegant pince-nez and continues, “We hardly see what is to be gained by superficial knowledge of this kind”.

Goodness knows what this anonymous reviewer would have made of Norman and Ryrie’s 728 pages of analysis, guidance and instruction, let alone the idea that mental health nurses now have to complete an undergraduate degree in order to register and practice.

Blogging for teaching

With apologies in advance for making an exceptionally obvious observation, but it has properly dawned on me this week that writing a blog might have significant advantages for teaching. A couple of days ago I was in class with a group of MSc students, talking about what we can learn from the study of service user trajectories. The sensible thing to do was to navigate to this site, and show people where they can download this recent paper. So that’s exactly what I did.

Unrelatedly, Mark Howard (who works at London South Bank University and who I used to work with in East London in the days when I was a community mental health nurse) has also been kind enough to comment on a post, and to mention that he sometimes points his students here. Hello again Mark, and hello to your students too – and thanks for your collective interest.

And today I’ve been planning a new Professional Doctorate module, and have been deliberately embedding links to this blog in my teaching materials. So what all of this is making me realise is that a blog (mostly) oriented towards research and academic stuff might, over time, become a useful educational resource. I actually can’t think of any other way in which a personal repository of papers, commentaries, onwards links and so on might be brought together.

Critical junctures

How pleasing it is to report that the paper I blogged about in this earlier post has now been accepted for publication. Co-written with Nicola Evans this (re)introduces the idea of ‘critical junctures’ and will appear in Social Theory & Health. We draw on two project datasets and show how action at pivotal moments can set individual service user trajectories on directions which are hard to reverse. We also show how, in certain circumstances, small-scale critical junctures can trigger (or be used to lever) larger organisational change.

Next up will be the checking of page proofs, and advance online publication via the journal’s website. What we won’t be able to do for another 18 months is upload a PDF of the post-peer review manuscript to ORCA. This is something Palgrave’s copyright rules are very clear about. In the meantime here’s the abstract which will, of course, be freely available:

Hannigan B. and Evans N. (in press) Critical junctures in health and social care: service user experiences, work and system connections. Social Theory & Health

This article makes an original contribution through the revitalisation, refinement and exemplification of the idea of the ‘critical juncture’. In the health and illness context, a critical juncture is a temporally bounded sequence of events and interactions which alters, significantly and in a lasting way, both the experience of the person most directly affected and the caring work which is done. It is a punctuating moment initiating or embedded within a longer trajectory and is characterised by uncertainty. As contingencies come to the fore, individual actions have a higher-than-usual chance of affecting future, enduring, arrangements. These ideas we illustrate with detailed qualitative data relating to one individual’s journey through an interconnected system of mental health care. We then draw on observations made in a second study, concerned with the improvement of mental health services, to show how micro-level critical junctures can be purposefully used to introduce instability at the meso-level in the pursuit of larger organisational change. In addition to demonstrating why scholars and practitioners should pay closer attention to understanding and responding to critical junctures we are, therefore, also able to demonstrate how their emergence and impact can be examined vertically, as well as horizontally.

Football and mental health

A highlight of last year’s Network for Psychiatric Nursing Research conference in Oxford was Alan Pringle‘s talk on football and mental health. Alan works at Nottingham University, and here’s what his web page has to say:

Alan has worked in the area of using football as a vehicle for mental health promotion and interventions in a number of ways in recent years.

His PhD looked at the impact that actively supporting a club (in this case Mansfield Town FC) could have on the mental health of supporters. He was involved in the development of the “It’s a Goal!” programme. This programme places staff in football stadiums to work primarily with young men in mental health promotion and mental health intervention work. “It’s a Goal!” has run in 16 different professional clubs from large premiership clubs like Manchester United and Stoke City to lower division clubs like Macclesfield Town and Plymouth Argyle.

Alan was involved in developing the Positive Goals football league with Nottinghamshire Healthcare Trust. This league for service users involves teams from all over the county coming together to play matches on a monthly basis and each year comprises of between 10 and 12 teams.

Alan is a member of the Football and Mental Health Group for Time-to-Change the national anti-stigma organisation.

Alan’s NPNR talk was excellent, and his research and wider work has clearly made a real difference. If you navigate to his webpage you’ll find references to publications he’s written, too. There’s also the It’s a Goal website, which is full of information.

This leads me nicely to last Tuesday at the Cardiff City Stadium, where along with thousands of others I witnessed the moment of Cardiff City‘s promotion to the top flight of football, securing a place in the Premier League for the coming season. A big deal all round. Here’s a photo, taken just after the game’s end.

MHNAUK launches a blog

Michael Coffey, chair of Mental Health Nurse Academics UK, has today launched the group’s blog at http://mhnauk.com.

On the site’s home page Michael writes that:

This is the first entry in what we hope will be a vibrant and engaging place for members of MHNAUK to communicate the range of work we as a group do […] we want to communicate to a wider audience via this blog to show what we are doing and to engage in dialogue about our views on the future direction of education, research and ultimately the practice of mental health nursing.

Michael also points to some of MHNAUK’s current projects. These include Andy Mercer (from Bournemouth University) gathering evidence on the different ways applicants for pre-registration mental health nursing courses are selected, and Fiona Nolan (from UCL) leading an overview of mental health nursing research in the UK.

I’ve posted a comment on the site, and look forward to others doing the same. Go check it out. Right now!

Learning from the study of trajectories

Trajectories paperHere’s a post about research, which draws on the paper Complex caring trajectories in community mental health: contingencies, divisions of labor and care coordination which I authored with Davina Allen.

One of the things I’m interested in is the study of ‘trajectories’. With colleagues, the US sociologist Anselm Strauss wrote about these in the book Social Organization of Medical Work. Most people will be familiar with the idea of illnesses ‘running their course’. To this everyday concept Strauss and his collaborators added a whole lot more, introducing the term ‘trajectory’ to refer:

…not only to the physiological unfolding of a patient’s disease but to the total organization of work done over that course, plus the impact on those involved with that work and its organization (Strauss et al. 1985: 8).

Trajectories are dynamic and often unpredictable, not least because they involve people. They are also vulnerable to being tilted by what Strauss et al term ‘contingencies’. Contingencies can have origins in the health and illness experience. So, a trajectory can (for example) veer off in a new direction because of an acute exacerbation of a chronic illness. But trajectories can additionally be shaped by contingencies which have organisational origins. These can relate to the biographies of workers, and to features of the system such as the availability of resources.

Trajectories can be studied. In my PhD I borrowed the design and methods used by Davina Allen, Lesley Griffiths and Patricia Lyne in their study of stroke care, and used these to understand the trajectories of people using community mental health services. In each of two contrasting parts of Wales I recruited three people currently using secondary mental health services. Each became the starting point for a detailed, small-scale, trajectory case study. Over a period of months I followed each person’s unfolding experiences, and the organisation of work surrounding. Using snowball sampling I mapped the network of (paid and unpaid) people providing care to each, and interviewed those identified in this way about their work. I observed care planning meetings, home visits, and read each service user participant’s National Health Service (NHS) records.

Community Mental Health JournalIn the publication for Community Mental Health Journal to which this post relates, Davina and I drew on these data to show how trajectories unfolding in the mental health field are shaped. We offered instances of trajectories being tilted by mental health crises, but also by key professionals leaving their posts and by a lack of resources within the larger system.

We then used data to reveal actual divisions of labour, in a way which has not (to the best of my knowledge) been done before  in the mental health context. By mapping the networks of care surrounding each user participant we were able to learn about work being done by all sorts of people, including many who (I suspect) are rarely thought of as making significant contributions at all. We wrote about the work of community pharmacists, support workers, lay carers and indeed the work of service users themselves.

Having laid all this out we closed by pointing to the importance of what Strauss et al called ‘articulation work’. This is the work associated with the management of trajectories, through mechanisms such as care coordination. Mental health workers in the UK know all about this through things like the care programme approach (CPA).

The detail of this paper you can read for yourself, with the link at the top of this post taking you to our author’s copy of the manuscript as stored on Cardiff University’s ORCA repository. This, word-for-word, is the same as the version of the article which is currently in press here.

For those interested in the paper’s back story, just to note that when it came to selecting a journal I was keen not to submit to a nursing publication. I have no problem with nursing journals per se, but this ‘trajectories’ paper was (and is) aimed at a wider readership. Community Mental Health Journal is based in the US, and publishes papers on, well, community mental health. And that fitted well with the intended audience. This said, one of the anonymous reviewers of the submitted manuscript had things to say about the language used, reminding us that the journal to which we had submitted is read by mental health practitioners and academics and not, primarily, by sociologists. Attending to the review meant some rewriting to improve accessibility. I’ll leave future readers to judge for themselves whether we succeeded.