Category: Mental health

Making Hay

Hay Festival 2015

I’m back from the annual week-long trip to the Welsh Marches, taking in an eclectic mix of speakers at both the Hay and the newer How the Light Gets In festivals. The first of these has grown in size to the extent that, for some years, it has been located out-of-town in a field of marquees. I remember visiting when events took place in the local primary school. The second, much smaller, festival makes use of the Globe building supplemented with tents across two sites.

There was plenty on offer related to the field of mental health. Andrew Scull used images to support a tour through mental health services across time, and Mark Salter gave a lively account of the limits of biology. Richard Bentall, Dinesh Bhugra and Simon Baron-Cohen debated categorisation and diagnosis, concluding (in largely consensual style) that what we need is more public mental health, peer support and respect. David Healy continued his critique of the pharma industry.

This year the weather was kind, which always makes a difference. Travelling further north for a day, deep into Powys, took us to the Elan Valley and a fine walk in the hills.

Caban Coch dam
Carn Gafallt

Back at the festivals, I’m always impressed when natural scientists are able to convey difficult concepts in ways which are understandable to lay audiences. This is not easy, I would have thought, when the working language is that of mathematics. On this occasion I took the time to listen to a discussion on the physics of black holes, and was glad that I did.

Next week sees me back at work, with a new office giving views over Cardiff towards the Bristol Channel. Here’s a photo taken just before I headed off for my week away. Look hard enough and you can, just about, make out the sea.

Office view: Cardiff, then the Bristol Channel, and Somerset in the far distance

Risk in inpatient child and adolescent mental health services

This week our full report from the RiSC study, An evidence synthesis of risk identification, assessment and management for young people using tier 4 inpatient child and adolescent mental health services, has been published in Health Services and Delivery Research. This is in gold open access form, and is free to download and read.

Here’s our plain English summary:

In our two-part study we brought together evidence in the area of risk for young people admitted to mental health hospital. First, we searched two electronic databases, finding 124 articles. Most were concerned with clinical risks, such as the risks of suicide. Using diagrams we grouped these articles together under a number of themes.

Young people who had been inpatients in mental health hospital, carers, managers and professionals helped us prioritise the types of risk we should concentrate on in the second part of our study. Our top two priorities were the risks of dislocation and contagion. We used the word ‘dislocation’ to refer to the risks of being removed from normal life, of experiencing challenges to identity and of being stigmatised. We used it to refer to the risks to friendships and families, and to education. We used ‘contagion’ to refer to the risks of learning unhelpful behaviour and making unhelpful friendships.

We searched 17 databases and a large number of websites for evidence in these areas. We asked hospital staff to send us information on how they managed these risks and we searched journals and reference lists. We identified 40 items to include in our review and 20 policy and guidance documents. The quality of the studies varied. We grouped the evidence together under seven categories.

We found little evidence to guide practice. The risks of dislocation and contagion are important, but research is needed to inform how staff might identify, assess and manage them.

This has been an excellent project to work on: a great team, and some good engagement with young people and others with a shared interest in what we’ve been up to. Next up is an accessible summary, and some writing of articles. More to follow!

Health and Care Research Wales

Last week I had the opportunity to join colleagues at the Millennium Stadium for the launch of Health and Care Research Wales. This is the new name for what was, until very recently, the National Institute for Social Care and Health Research (NISCHR).

I’ve written before about the reorganisation of the research infrastructure here in Wales (see here and here), and Thursday’s event was an important unveiling of the outcome of recent deliberations. For a shortcut, here’s the public information video:

And, for a single-page diagram of how everything is fitting together, follow this link. As this shows, one of the things Health and Care Research Wales has done is to (re)commission a number of Centres and Units, an example of the former being the National Centre for Mental Health (NCMH).

By the looks of things, funding streams are to remain much as they were under NISCHR, with opportunities for PhD, post-doctoral and project awards to follow. Researchers in Wales can continue applying for support to many (but not all) of the National Institute for Health Research (NIHR) programmes. This is vital, because it is through this mechanism that funding is available for studies into health services and delivery (amongst other things). This is an area of research in which Wales has no dedicated funding stream of its own, and in which the new Centres and Units may be interested to varying degrees. 

Finally, a word on a Welsh Government centrepiece, HealthWise Wales. This is aiming to prospectively, and electronically, recruit many thousands of people into future health and social care research. 

Spring election, and the politics of mental health

It hasn’t always been like this, but mental health is something which politicians now talk about. In the run-up to next week’s general election mental health has even featured in public appeals to voters. The Liberal Democrats have particularly campaigned in this area, and in their manifesto promise £500 million per year for better mental health, and specifically make a case for investing in research. Labour talk about giving mental health the same priority as physical health, and the Conservatives say pretty much the same. Reviewing all the main parties’ manifesto promises for evidence of concrete plans for post-election improvements to mental health care, over on his blogsite the Psychodiagnosticator observes ‘that many of them were so vague as to amount to no promise at all‘. I think he has a point.

Possibly the broad manifestos produced in the run-up to a general election are not the places to look for fully worked-up blueprints of what future mental health policy across the UK might look like. Perhaps, more accurately, we should not think about ‘UK policy’ in this context at all. Members of Parliament elected to Westminster next week, from amongst whom a new government will be formed, will have authority to directly shape services in England only. Health and social care remain areas over which devolved authorities have jurisdiction, and for a ballot delivering a government with the power to pronounce on mental health care here in Wales we must look to the National Assembly elections to be held in 2016. I’ve indicated before that mental health policy here is different from that in England, and indeed from other countries in the UK. Consider again the case of the Mental Health (Wales) Measure. This is a piece of legislation for Wales alone, mandating for care and treatment plans, care coordinators, access to advocates in hospital and the right of reassessment within secondary mental health services following discharge. It was introduced in the face of some strong, pre-legislative, criticism from at least one senior law academic (Phil Fennell) who in 2010 began his submission to the National Assembly by saying,

The gist of my submission to the Committee is that this measure, although well-intentioned, is cumbersome, unduly complex, and will lead to a delay in providing services which ought to have been available already to service users and their families in Wales under the National Service Framework for Adult Mental Health and the Care Programme Approach.

Five years on the Measure has not only passed into law, but been subjected to a round of post-legislative scrutiny by the National Assembly’s Health and Social Care Committee (see my post here), to which the Welsh Government has now responded. With data from across both England and Wales, COCAPP (and in the future, COCAPP-A) will have something to say about how care planning and care coordination are actually being done, and readers will be able to draw their own conclusions on the extent to which changes in the law trigger changes to everyday practice. And, whilst we’re in policy comparison mode, for a view from Scotland try Paul Cairney. He argues that divergence in mental health policy across the UK, exemplified by contrasting English and Scottish experiences of reforming the law, reflect differences in both the substance of policy and in policymaking style.

In all of this I am, again, reminded of the wicked problems facing all policymakers who seek to intervene in the mental health field. Whatever direction it takes, future policy will be open to contest and will surely trigger waves of consequences.

The shape of nursing (reprise)

York, March 10th 2015
York, March 10th 2015
Yesterday I joined other members of Mental Health Nurse Academics UK at the University of York, for what turned out to be a particularly lively spring term meeting. 

We were treated to two high-quality local presentations in the morning: from Simon Gilbody on smoking cessation interventions for people using mental health services, and from Jerome Wright on developing community mental health in Malawi. 

In the early afternoon David Sallah from Health Education England (HEE) took the floor to talk about the Shape of Caring review, the final report from which is due to be published later this week. From David’s presentation it is evident that HEE will be making a case for a significant shake-up to the way nurses are prepared. 

MHNAUK members in York were concerned with what they heard. Uppermost for many was a concern that HEE’s wish for future student nurses to commence their courses with two years of Project 2000-style generalist preparation will erode the time available for mental health-specific learning. People were also struck by the apparent lack of a clear evidence base for change. It is, after all, only a handful of years since the Nursing and Midwifery Council introduced its current standards for education, and curricula up and down the country were rewritten in response. In the absence of robust evaluations of what we already have, are we really sure we know what needs fixing in nurse preparation? 

The Shape of Caring review is sponsored by a body with authority in England only, but I am under no illusions that any changes flowing from it will be felt equally here in Wales. David Sallah mentioned cross-UK talks as having already opened. As people observed yesterday, however, any changes to nursing education recommended at this point may be lost following a general election where greater priorities occupy the time of a newly formed government. 

Meanwhile, and with a firm eye on the forthcoming election, the Council of Deans of Health has been busy making a case for health higher education and research in its new publication Beyond Crisis. This has three main messages, addressing: workforce planning; building on the talents of the current workforce; and investing in research. Amongst other things the Council is asking for proper forward planning to avoid cycles of boom and bust, opening up opportunities for continuous professional development and protecting and advancing research. It is also suggesting that new ways of financially supporting health professional education should be looked at, including models where contributions are made by students and employers.

Fieldwork

FieldworkToday brought some interesting discussions on qualitative fieldwork, including on researcher roles and relations during data generation. First up was a COCAPP-A project meeting which included a conversation about observational methods in inpatient mental health settings. Second was a seminar led by Michael Coffey‘s PhD student Brian Mfula, drawing on his ongoing PhD experiences of ethnographic fieldwork centring on care planning and care coordination in forensic mental health care.

Brian shared his experiences of negotiating access, and of his reading and thinking about insider and outsider roles. This led to a wide-ranging talk amongst those present on fieldnotes and approaches to qualitative research (Grounded theory, anyone? Phenomenology? Or perhaps thematic analysis is more your thing?). We talked, too, about reflexivity, and knowing when (and how) to leave the field. Along the way this took us to the National Centre for Research Methods’ excellent Review Paper, How many qualitative interviews is enough?

Around ten years ago I contributed a chapter covering some of this territory to Davina Allen and Patricia Lyne’s edited book, The Reality of Nursing Research: Politics, Practices and Processes. Titled Data generation, this contrasted survey principles and practices in The All Wales Community Mental Health Nursing Stress Study with the ideas and methods in my (then-ongoing) ethnographic PhD, Health and Social Care for People with Severe Mental Health Problems. I wrote about decision-making, and the extent to which data are interactionally produced by researchers and participants together:

Whilst different strategies place different expectations and demands on nurse researchers, this chapter has also shown that – whatever approach is followed – data generation is always a purposeful activity demanding a reflexive stance. The principle of reflexivity underpins the idea that research always takes place in contexts, shaped to significant degree through an interaction between researcher and researched. The character of data produced in a study is moderated by aspects of the researcher’s personal biography and their interaction with research participants. This is a well-established principle in the social sciences. In nursing research, however, reflexive investigators have to give consideration not only to general biographical aspects such as age and gender, but also to their specific occupational backgrounds and practitioner experiences. A self-conscious, reflexive approach includes acknowledgement of the utility and the limitations of practitioner knowledge, and the implications of this for data production.

I’m now thinking that today’s seminar and discussions show how live these issues remain, and will ever remain so.

#NPNR2015 news

I’m pleased to have had the chance to join the scientific and organising committee for the NPNR Conference, and to have taken part in a series of face-to-face and electronic discussions to plan this autumn’s event.

Nowadays the NPNR Conference is a collaboration between Mental Health Nurse Academics UK and the RCN. Early information about the 21st running of the event can be found here. For ease, here is an extract with an outline of this year’s themes and more:

21st International Network for Psychiatric Nursing Research conference
“Building new relationships in mental health nursing: opportunities and challenges”

17 September 2015 – 18 September 2015 – Manchester Conference Centre, Sackville Street, Manchester M1 3BB

As the NPNR conference convenes for the 21st time developments in research, education and delivery of mental health nursing care continue apace. New knowledge opens the way for new forms of relationships with people who use services, their families and with colleagues within and outside our discipline. The way mental health nurses are educated and how they develop and research their practice is also changing, bringing with it new opportunities and many challenges.

This year’s conference will engage with the emerging evidence and changes in the landscape of care as we seek to craft new understandings of what it means to be a mental health nurse. As we become attuned to the vagaries of policy and the volume of new knowledge for our profession we must also rise to the challenge of ‘seeing’ in new ways. Our intention is to provide a space where colleagues can debate and critically engage with flux in the profession.

The NPNR is the place for mental health nurses and those we work with to present and learn new knowledge. We encourage you to submit your research and practice development initiatives and participate in discussion so that you leave the conference informed, enlightened and with new energy to engage with the challenges ahead. Alongside our expert speakers, great practice development and research papers the conference promotes a friendly and welcoming atmosphere that has been the hallmark of NPNR for 20 years. This year in addition to our exciting themes we include new developments for 2015.

Conference Highlights for 2015

• Two day conference for academics and practitioners working across mental health nursing
• Renowned keynote speakers
• Call for abstracts including options to present posters, concurrent, symposia and workshops
• Networking, collaborating and discussing the latest in mental health nursing research
• Conference reception and networking dinner
• Announcing the recipients of both the Eileen Skellern Lecture and the Journal of Psychiatric and Mental Health Nursing Lifetime Achievement Award 2016
• Special discounts for conference presenters; RCN members; students; carers and service users
• Enhance your continuing professional development
• Poster Trail
• Fringe events
• RCN exhibition

Call for Papers will be open from the beginning of March 2015

Concurrent themes:

• New Conversations, New Platforms, New Evidence
• Collaborations and Partnership in Research
• New Voices, New Researchers
• Innovation and Development in Practice and Education
• Changing Systems, Changing Relationships

Abstracts addressing the conference themes are invited for the following types of presentations:

1. concurrent sessions
2. poster presentations
3. symposia
4. workshops
5. fringe events

Key timings:

Thursday 17 September 2015
8.30am – 10am: Registration and Fringe Events
10.00am – 6pm: Conference

Friday 18 September 2015
9.00am – 9.45am: Registration
9.45am – 4.15pm: Conference

The hashtag for the conference will be #NPNR2015:

And, for those who also use LinkedIn, there is this group.

I’ll aim to post further updates on all this over the coming weeks and months.

Taking Measure

Here in Wales we have the Mental Health Measure. This is a piece of legislation passed in 2010 and implemented in phases in 2012, and which is intended to improve the quality and timeliness of mental health services. Specifically, it provides for:

  • primary mental health care;
  • care and treatment planning and care coordination;
  • the right for an automatic reassessment of needs in secondary mental health services for people discharged within the previous three years;
  • advocacy in hospital.

This month the National Assembly for Wales Health and Social Care Committee has reported on its post-legislative scrutiny of the Measure. The Welsh Government has already committed to conduct a formal evaluation of the legislation through a duty to review, built in as the Measure passed into law. In pursuit of this an inception and an interim report have already appeared, with a final document due in 2016. With the Health and Social Care Committee’s report appearing this month it is clear that the Mental Health Measure is becoming seriously scrutinised.

When the Committee published its call for evidence last year the COCAPP research team submitted a response alerting Assembly Members to our ongoing study. It would have been ideal had we been able to report key findings, given that COCAPP is an examination of care planning and care coordination and is, therefore, of interest to anyone wanting to know how part 2 of the Measure (dealing with care and treatment planning) is being experienced. But the Health and Social Care Committee’s timescales and those of COCAPP were not aligned, meaning the best we could do was to draw attention to our project.

This month the Committee praises many aspects of the Measure but also makes ten recommendations. They address:

  1. meeting demands for primary mental health care, particularly in the case of children and young people;
  2. improving the collection of data to better support the evaluation of primary mental health services;
  3. taking action to improve the form, content and quality of care and treatment plans, with a view to increasing service user involvement and spreading best practice through training;
  4. making sure that rights to self-refer for reassessment are properly understood and communicated to all;
  5. improving staff awareness of service users’ eligibility for independent mental health advocacy in hospital;
  6. setting timescales for new task and finish groups reviewing the Measure, and setting out plans to respond to their recommendations;
  7. during evaluations of the legislation, consulting with as wide a range of people as possible using traditional and novel approaches;
  8. ensuring that information is available in a variety of formats, so that all groups of people are able to access this and to understand;
  9. following the publishing of new plans for the improvement of child and adolescent mental health services, making clear how these will be realised;
  10. carrying out a cost benefit analysis of the Measure.

Clearly, Assembly Members have detected evidence of an uneven pace in the development of primary mental health care across Wales, and are particularly concerned to make sure that the mental health needs of children and young people are properly identified and met in timely fashion. As a COCAPP-er, I am interested to read that the Committee thinks care and treatment planning for everyone can be improved, informed by examples of best practice and through investment in staff training. I also pick out the recommendations on improving service user collaboration, and estimating the costs and benefits of the Measure. These resonate, to me, with current concerns in Wales with prudent health care and co-production.

And as for COCAPP’s findings? Suffice to say our draft final report is now under review with the National Institute for Health Research (NIHR) Health Services and Delivery Research (HS&DR) Programme. More to follow in due course…

Critical junctures goes green

CJIn a series of earlier posts on this site (here and here), and in a piece for the LSE’s Impact Blog here, I wrote about Nicola Evans‘ and my article, ‘Critical junctures in health and social care: service user experiences, work and system connections’. This is published in the journal Social Theory & Health, and the behind-the-paywall link to the full text can be found here. Now that 18 months has passed since the article first appeared online, Palgrave’s copyright rules allow a post-peer-review, pre-copyedit, green open access version of the full text to be made publicly available. So, for a free copy of the paper downloadable from Cardiff University’s ORCA repository the link to follow is this:

Hannigan B. and Evans N. (2013) Critical junctures in health and social care: service user experiences, work and system connections. Social Theory & Health 11 (4) 428-444

The paper draws on data from Nicola’s PhD, ‘Exploring the contribution of safe uncertainty in facilitating change‘, and from my post-doctoral study of crisis resolution and home treatment services, ‘Mental health services in transition‘. For a reminder of what the paper is about, here’s the abstract in full:

This article makes an original contribution through the revitalisation, refinement and exemplification of the idea of the ‘critical juncture’. In the health and illness context, a critical juncture is a temporally bounded sequence of events and interactions which alters, significantly and in a lasting way, both the experience of the person most directly affected and the caring work which is done. It is a punctuating moment initiating or embedded within a longer trajectory and is characterised by uncertainty. As contingencies come to the fore, individual actions have a higher-than-usual chance of affecting future, enduring, arrangements. These ideas we illustrate with detailed qualitative data relating to one individual’s journey through an interconnected system of mental health care. We then draw on observations made in a second study, concerned with the improvement of mental health services, to show how micro-level critical junctures can be purposefully used to introduce instability at the meso-level in the pursuit of larger organisational change. In addition to demonstrating why scholars and practitioners should pay closer attention to understanding and responding to critical junctures we are, therefore, also able to demonstrate how their emergence and impact can be examined vertically, as well as horizontally.

The shape of nursing?

Congratulations to Steven Pryjmachuk on his pre-Christmas election as Vice Chair, and Chair-elect, for Mental Health Nurse Academics UK. Steven works with Joy Duxbury throughout 2015 and 2016, and becomes Chair for the two years following.

During the December 2014 MHNAUK election, for which I acted as returning officer, news seeped out that Health Education England’s Shape of Caring review (led by Lord Willis) was weighing up the future of UK nursing’s four fields (mental health, adult, child, learning disability). Michael Coffey, in his last month as MHNAUK Chair, led this response sent to the Health Service Journal:

Michael Coffey
Chair of MHNAUK

11th December 2014

Dear Sir

Shaun Lintern writes in the Health Service Journal (11th December 2015) that Lord Willis, chair of the Shape of Caring review envisages changes to nurse education that would see the loss of the current branches of nursing. One of those fields is mental health nursing. Those who practise in this area provide skilled compassionate care to some of the most marginalised and stigmatised people in society. We write on behalf of Mental Health Nurse Academics UK a group consisting of representatives of 65 Higher Education Institutions providing education and research in mental health nursing. As people long experienced in this field we are disappointed though not surprised to read your article presenting these views on the future of nurse education. We are disappointed because the evidence for the changes that Lord Willis claims are needed is largely non-existent. We are not surprised because we have been here before and can see that despite claims to the contrary, there is no evidence that this future for nurse education will deliver what it promises.

Nurses account for the highest number of professionals providing mental health care; the median average number of nurses per 100,000 of the population working in mental health is 5.8, more than all other professionals combined (WHO, 2011), making mental health nurses pivotal to the delivery of the WHO action plan. None of this is likely with a generic curriculum.

To be clear “the greater element of generalism” (which presumably means adult nursing) has been tried previously in the UK and found wanting. Internationally generalism has failed to deliver better care for people with mental health problems. The effect will be to dilute mental health nursing when there is increasing evidence that specialist knowledge, values and skills are required in the care of people with a range of long-term conditions and dementia. We remain unclear from your article what precisely is being proposed though our favoured suggestion would be for nurses to spend two years rigorously learning how to interact with people in compassionate ways that promote dignity and respect (core mental health nursing skills if you will) before launching themselves into the cold clinical world of high technology nursing.

The evidence from abroad and from evaluations here in the UK of the previous version of generalist frontloaded training (Project 2000; Robinson and Griffith 2007) show clearly that mental health nursing as a specialism suffered from a minimal focus on mental health in curricula and a depletion of mental health skills across the workforce. The strengthening of the mental health ‘field specific’ elements within the 2010 NMC standards reflected positive differences in areas such as language, the co–production of care and inter–professional practice. Any move to generic, or general (adult?) nurse ‘training’ as a start point for all will inevitably lead to a different set of values underpinning mental health nursing practice over time.

The expectation that the training of mental health nursing skills will be picked up and delivered in the workplace is without foundation despite the numerous examples to do this. The result will be that in an era of claims of parity of esteem people who use services will effectively be deprived of specialist trained nurses. Moreover, there is no evidence that current models of training are not fit for purpose or that a focus on generalist nursing skills will adequately address the needs of people with complex and enduring mental health difficulties.

The longer term effect of this approach is clear to see from countries who have moved down this road ahead of us, depleted services provided by unskilled workers, extra costs for employers in re-training and educating a workforce not fit for practice, difficulty in securing sufficient qualified staff to provide evidence based mental health care and longer term the stripping away of a set of skills in higher education that are unlikely to be replaced.

We don’t know what advice Lord Willis has taken to come to his view. Our worry though is that already the language being used here is designed to undermine professional skills that have been long in the making. For example, the unhelpful rhetoric embodied in the use of the term “silo” downplays specialist skills for the purposes of promoting something far less specific like “flexibility”. It is a largely hollow rhetoric and is never heard in relation to cardiologists, neurosurgeons or diabetes nurses. It seems that the pressure for change then is not one premised on the needs of people using healthcare services nor one based on the evidence of what works but driven by other factors that choose to position specialist nursing skills (and by corollary those who need these skills) as having little value.

We also note that any modification to the NMC’s standards for pre-registration nursing education and to the four fields driven by the Shape of Caring review will be felt across all parts of the UK. As an HEE-sponsored Review we are concerned that voices from parts of the UK other than England will not have opportunities to be heard.

We readily acknowledge that the full report is not yet due but wish to advance the notion of such a review democratically reflecting the voices of nurses and the people who use their services. In this regard we have been disappointed at the absence of any real attempt by the review to engage with our group specifically and have questions about the level of engagement with mental health service users more generally.

Yours Sincerely

Dr Michael Coffey
Chair of Mental Health Nurse Academics UK
Swansea University

Professor Joy Duxbury
Chair-elect of Mental Health Nurse Academics UK
University of Central Lancashire

Professor Len Bowers
Institute of Psychiatry
Kings College London

Professor Patrick Callaghan
Nottingham University

Professor Alan Simpson
City University London

Professor John Playle
University of Huddersfield

Professor Steven Pryjmachuk
University of Manchester

Professor Hugh McKenna
University of Ulster

Professor Doug Macinnes
University of Canterbury

Professor Karina Lovell
University of Manchester

Professor Geoff Dickens
Abertay University

Dr Ben Hannigan
Cardiff University

Dr Liz Hughes
University of York

Dr John Baker
University of Manchester

Dr Mick McKeown and Dr Karen Wright
University of Central Lancashire

Dr Robin Ion and Emma Lamont
Abertay University

Dr Sue McAndrew
University of Salford

Dr Andy Mercer
Bournemouth University

Dr Naomi Sharples
University of Chester

Dr Majorie Lloyd
Bangor University

Around this time there was some debate, via email, amongst MHNAUK members centring on the kind of nurses people felt were needed for the future and how they might best be prepared for practice. Important differences in view were freely expressed. Not all who are associated with MNHAUK are in favour of the retention of mental health nursing as a pre-registration field, for example, though my reading of the flow of pre-Christmas exchanges is that most are. Joy Duxbury and Steven Pryjmachuk, I suspect, will be returning to some of this debate during their tenures.